A Letter To My Younger Self

Standard

Dear younger FZ,
I know that right now you are confused, in pain, and very frightened, but everything is going to be even better than ok. You have an injury in your left foot called Complex Regional Pain Syndrome (over time you will learn that name off by heart!), and it is a nervous system dysfunction, which means your brain is sending the wrong messages to your foot. Now, this will cause you massive amounts of pain, but the journey you go on and the people you meet are spectacular.
You will be going as an impatient to the Adelaide Women’s and Children’s Hospital, and I know this will freak you out to the point of crying in public, but your parents come with you and tell you stories about when they had to go to hospital and all the people they met, and they make you feel a lot better. When you stay at the hospital, you have lots of hard physiotherapy to get through, but you will meet your physiotherapist that helps you through the pain. You, your mum and your physiotherapist with even go to a cafe in the hospital and you will get so much cocoa in your hot chocolate it will be like heaven! You go to that hospital 3 times, the first time for 4 days, the second for 2 weeks and the last time for another 2 weeks. After the second time, you and your family go on a well overdue holiday to Adelaide. You are on the beach having lots of fun, and even though you put on lots of sunscreen, something terrible happens…your sore foot gets sunburnt! You can’t join in with any other activities that will hurt your foot, but somehow your family makes you feel very included. Always remember how great your family is! So after you finish your holiday (which will still be an amazing, fun time), you have to go back to hospital for 2 weeks. Sadly your last physiotherapist can’t have you as her patient, so you get a new one. It may feel like you are being pushed way to hard and even though after many sessions you have a bit of a cry, you learn much more and still have your mum’s cuddles and your family’s encouraging words. Plus, there is always the StarLight room where you discover a game that could almost be made just for you (spoiler alert! It is a fashion game where you have your own store and avatar and you enter outfits for fashion shows! You love it…and you sort of get a bit addicted to it!)! Once you go to the Adelaide hospital for the third time, it is also the last time!
You end up buying a wheelchair, and you go on weird types of crutches, but you get used to them both. You build up to not using crutches around the house at all and using the wheelchair only sometimes in big places, but you do have to start over because of flare ups every once in a while. You are very strong and determined, and even when you have to start over your process of walking again, you accomplish it.
You have a blog, and everyone is so supportive and encouraging that views it. You are able to talk about struggles, achievements and sometimes random stuff that pops into your imaginative brain! Oh yeah, you also name your two feet Lexi Leftie and Rainy Righty, and you have a Lexiversery once a year to celebrate how long you have been a survivor of CRPS.
Basically, your life is a roller coaster of dramatically painful lows and out of this world highs, but you always have people that love and care about you, so don’t worry, you can get through everything life throws at you! Never give up on anything little FZ!

Love your future self, FZ out!! 🙂

IMG_1041

Advertisements

Just a Kitten with a Lion’s Heart

Standard

Howdy everybody!
I would just like to start off by saying happy New Year! I hope everybody had a great 2015 and got to celebrate the last day with lots of happiness. How was Christmas too? We had a Christmas lunch with some of our extended family, and I must say I got pretty spoiled! I hope everyone had a great, fun and exciting Christmas and New Year.
I apologise greatly for not blogging in such a long time, I have had some busy days recently but don’t worry because I am still The Fluro Zebra!
In 2015, I accomplished lots of my goals but never got round to taking them down from my dream board. Now though, I have taken them down, written on the back when I completed them and what it felt like, and collected them together so that when I am older I can look back. I had three already accomplished and they were: doing the tree pose on my left foot, going to school full time (woo hoo!) and walking without crutches (also woo hoo!). That’s right, I haven’t used my crutches or wheelchair for months and now I am going to school for the entire day! Another big thing about school is that I will be School Captain for 2016!!!! I felt so honoured to chosen and I think that this year will be my favourite for everything.

IMG_8655[1]
My new dreams that are already up on my dream board and ready to be achieved are: 0 meds (which I am already lowering), jog 50m and go down a big water slide in our home town. These I am trying to work towards right now. With all my other dreams, some I am getting close to achieving, for example the fashion show dream. For my birthday this year I got two VIP tickets to a fashion show! I am so excited and I can’t wait for it! It is in March so it’s not too far away. Another example is going to a trampoline park dream. I have been practicing and practicing on a little trampoline so hopefully very soon I can go to that and have some fun!

IMG_8656[1]
So, as you can see, no matter what challenges in life you are facing nothing can stop you achieving your dreams if you hold a determined heart, positive mind and always remember to laugh. Even though I still have CRPS, I have learnt how to manage the pain and reduce the symptoms, and I am so grateful for all my improvements. Two years ago I would never have thought that I would be a school captain, going to school full time and feeling like an actual kid again. Although this has been such a tough experience, I feel like I had it for a reason and now I am noticing all the things I have learnt. My mum always says that I am a kitten with a lion’s heart and I finally feel like I have found my roar!
FZ out!! 🙂

 

Dream it-Believe it-Achieve it!

Standard

Hiya!
Something that I think is really important for everyone is dreams. Not only the magical ones at nighttime that can make you wake up with a sleepy grin, but the dreams you think about daily that you hope to one day achieve. All dreams come from the heart, and I like to think of the process like a dream making machine. Once your heart knows what you want, it sends a message to your head and then you can decide whether you want to start working for it to come true or to just think on it a bit longer.  

 When you have a strong dream that you want to do, it won’t usually  just happen to you, you have to do your part of the work. Like for example, my CRPS foot. I wanted to get back to walking and it didn’t happen just by me sitting in bed resting my foot. I had to work with people and do lots of difficult physio to get where I am now, walking short distances without my crutches. Aside from all those physical things I had to do, making a dream board and being able to see it everyday helped a lot too. Every morning I look up at my dream board and imagine how good it will feel once I achieve my goals so that it starts my day in a happy way. A great thing about a dream board is that you can be as creative as you like when making it. I have been  honoured to be able to see other dream boards and I noticed how all the different designs explained the people who made them. Some had pictures and words, and some had quotes and drawings. I decided to have little patterned cards that I thoughtfully pegged up on my dream board,  so that as soon as I achieve a dream I can take that card down and put a new one up. 

  I am going to keep the cards that I have completed so that I can hole punch through them and turn them into a book of memories for when I’m older. Then I can see everything I went through, all the dreams that I put up and proudly achieved and took down. I once heard that a comfort zone is a prison of your own making, so push your boundaries out wide for your dream board, especially since there is no limit to what one person can achieve.

So get out the glue gun, scissors, printer and imagination and start creating your dreams today!

FZ out!! 🙂

  

  
  
  (This picture is a collection of ideas from Google images)

Poetry: Words of the Soul

Standard

index

Ciao!

I recently entered a poetry competition at my school and I wanted to share my entries with you! Those people with chronic pain will understand exactly what I have written about, I am sure.

I am Kind and Unique
An ‘I am Poem’
By FZ

I am kind and unique
I wonder what my future will be like
I hear a beautiful angel humming sweetly
I see the Eiffel Tower glowing in the night
I want to live an exciting life
I am kind and unique

I pretend I feel no pain
I feel sprinkles of hope in the air
I touch the stars in the night sky
I worry about my Complex Regional Pain Syndrome
I cry about the death of my very close bunny
I am kind and unique

I understand sympathy
I say be kind to one another
I dream about reaching out to people
I try to stand out
I hope I can have my normal life back
I am kind and unique

My Pain
A ‘Ballad Poem’
By FZ

The nights are so cold,
My body feeling old,
I need to be safe,
So I go to my room,
As I assume,
That I am doomed.

People ask questions,
And give me suggestions,
But will never know what to do,
When I bite my lip,
And tighten my grip,
People wonder why.

I miss running around,
And jumping on the ground,
With nothing left to do but wait,
I have to work hard no matter the pain,
But there are always things I get to gain,
So my life is okay.

With things to do,
While I am one of the few,
Nothing can stop me now,
My mind is kept busy,
Which sometimes makes me dizzy,
But I just need to make things happen.breathe-in-experience-breathe-out-poetry-quote-1

Random Act of Kindness: June 2015

Standard

Yo!

I am so so sorry I have missed a few random acts of kindness but it was definitely only because of illness. I am feeling a lot better now, so this post is about June’s RAOK. I have made a little movie that explains each step for creating the act of kindness I chose. I decided to print out my favourite quotes and pack them into a small box…but I won’t tell you too much because the movie says it all! Just remember, a random act can be big or small.

In the words of Ellen DeGeneres, “Be kind to one another!”

FZ out!! 🙂

Fight Song for a Warrior Girl!

Standard

What’s up?!

I have heard a lot of songs that have basically explained what I am going through in terms of my CRPS, but none have been as perfect as the song below. I have listened to it many times but never noticed what the lyrics were actually saying. I had been stuck in bed after a bad fall for weeks and weeks, but I have been trying to show my power no matter what! Just like the song says “there is a fire burning in my bones” (for me it is my skin) and this is my fight song. Sometimes all you need is someone else to remind you that you are stronger than you feel and that you can do anything you put your mind to. I want to get back to playing basketball and because somebody said I can, I am working as hard as I can trying not to let anything bring me down. If I do get knocked down, I will just get back up, and those are my fight words. I know that everyone is way stronger than they believe and if they can just think about how much they will love and enjoy what they are working towards, they will power through and succeed. Trust me, I know because I have been through it many, many times and to be honest, it is the best feeling to know you have just achieved something that inside your heart is massively big! Now, introducing my new song that I will be listening to whenever I am feeling beaten down. I hope it can help you too…

FZ out!!

PS. The good news is I have recently started walking with crutches again and nothing can stop me now! 😀

Driving Through Life on Your Motto-cycle

Standard

Howdy peeps!

What is your motto? In today’s post I would like to talk about life mottos. When I think a bit negatively and don’t know if I can achieve my goals, I like to come up with a motto to keep telling myself throughout the year. What I do is I think hard of one to suit me for the rest of the year and then I have little everyday ones. My main motto this year is ‘Make It Happen’. I came up with it because I bought a diary that said Make It Happen on the cover. My motto has changed me from being a victim to being a warrior of my condition. I always hope that things will happen positively. I believe that the only way that this will happen is if I make it happen. I am a lucky person but it takes a little work to turn your good luck into personal achievements. It takes confidence, determination, persistence and of course some blood, sweat and tears. CRPS won’t be holding me back!

So if you think really hard, what do you want to say to yourself in those tough times? What do you want to say to yourself when you are feeling sad or weak? Sometimes just telling yourself you can do it makes you power through the situation. I know that thinking positively helps me be determined.

If you want to keep moving confidently through life and not feel like you can’t achieve something, I recommend thinking of a powerful quote or motto to help you push through those moments! So get on your ‘motto-cycle’ and enjoy the ride.
Everyone have a nice day, I’d love it if you shared your life motto with me below!

FZ out!! 🙂

IMG_1621